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Omaha Steve

(105,580 posts)
Sat May 10, 2025, 08:08 AM May 10

My Frontotemporal Dementia (FTD) and Social Security Disability Insurance (SSDI) [View all]


I was diagnosed with FTD just a week before Christmas in 2013. https://www.theaftd.org/what-is-ftd/disease-overview/

In December 2014 I applied for SSDI. I learned that Social Security considers FTD a "Compassionate Allowances" (CAL). I was still sitting on pins and needles until I was approved for SSDI. Because of this I didn't have to hire a lawyer.

Frontotemporal Dementia (FTD), including Pick's disease and Primary Progressive Aphasia (PPA), is eligible for Social Security Disability Insurance (SSDI) benefits. The Social Security Administration (SSA) includes FTD within its "Compassionate Allowances" (CAL) program, which expedites the application process for individuals with severe, debilitating conditions like FTD

As most of you know, because of some warning signs, my doctor recently had me take a 3-hour driver's test (I passed). Taking Trazodone has helped slow the advance of my FTD.

The reason I'm posting this is because DUer JMCKUSICK (John) is applying for SSDI. He does this at a time when Trump is closing Social Security offices. This means longer wait times for services, appeals, etc.

Because of the standard to reject the first time application, he has filed an appeal with the help of his lawyer. It is a waiting game.

John has come to us for financial help before. John has always been open about his case. He updates us often. He has named his doctors and hospital. He has been open to advice.

I'm asking the DU to again help john, who has nowhere else to turn. If you can afford a few dollars, that would be great. A kick to keep this visible and an R would do wonders.

Here is john's post from last night: https://www.democraticunderground.com/10182173667

John's gofundme page: https://www.gofundme.com/f/help-john-mckusick-overcome-health-and-financial-struggles It has $5,917 raised as of now.

I'm a platelet donor. I never get to see those that I'm helping. I'll enjoy watching John get some much-needed help from the DU community.

I can't post this in the Lounge because of the reference to Trump.

Regards,

Omaha Steve (OS)
46 replies = new reply since forum marked as read
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Donated. Thanks for the reminder, Steve! Scrivener7 May 10 #1
kick debm55 May 10 #2
Thank you so much for your JMCKUSICK May 10 #3
I got my SSDI after being denied CountAllVotes May 10 #4
I have to say that it is you and so many of you that JMCKUSICK May 10 #14
This message was self-deleted by its author CountAllVotes May 10 #19
Thank you for doing this mgardener May 10 #5
Thank you for letting us know. milestogo May 10 #6
Donated. "There but for the grace of God go I." Raven May 10 #7
Thank you so very much Raven. JMCKUSICK May 10 #13
Not that long ago... Hugin May 10 #8
So well said,, thank you Hugin. JMCKUSICK May 10 #12
Thank you so much, Steve. We took your advice. wordstroken May 10 #9
Done 🙂 MLAA May 10 #10
Thank you very much Omaha Steve. debm55 May 10 #11
Thank you, Omaha Steve Wild blueberry May 10 #15
Kicking love_katz May 10 #16
Done. DFW May 10 #17
Thank you. As someone who just was approved for SSDI after 3 years I can empathize. Donation done! Cheezoholic May 10 #18
Done. Will add more later in the month. Nanuke May 10 #20
Thank you so much Nanuke, I'm so JMCKUSICK May 10 #21
I love reading your tales about your kitties. Nanuke May 10 #25
Kick JMCKUSICK May 10 #22
Thanks my brother OS; I had no idea about this peacebuzzard May 10 #23
I've been going through the comments JMCKUSICK May 13 #44
We re getting close to the Greatest Discussions on the front page Omaha Steve May 10 #24
Almost there Omaha Steve May 10 #32
K&R Bayard May 10 #26
Ty, Steve! SheltieLover May 10 #27
Thank you for sharing your post. Steve. debm55 May 10 #28
Thank you, Steve Mike 03 May 10 #29
Kick JMCKUSICK May 10 #30
kick JMCKUSICK May 10 #31
Kick JMCKUSICK May 11 #33
Kick sakabatou May 11 #34
I share your hope and pray your difficulties with the SSA JMCKUSICK May 13 #43
I just made a donation Omaha Steve May 11 #35
Thank you so very much Steve. JMCKUSICK May 11 #36
Kick JMCKUSICK May 11 #37
We got to R 100 Omaha Steve May 11 #38
Kick JMCKUSICK May 12 #39
Since this post went up.. Omaha Steve May 12 #40
kick JMCKUSICK May 12 #41
Kick with Gratitude JMCKUSICK May 13 #42
K&R mvd May 13 #45
Kick again. mvd May 13 #46
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