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cali

(114,904 posts)
2. Oh man, nothing like someone else's perspective to shed some light on your own situation
Mon Apr 28, 2014, 03:52 PM
Apr 2014

I can't imagine having MS undiagnosed for 13 years.

RSD is neuro-vascular. Both nerves and vascular system are involved. Neurontin has been tried along with sympathetic spinal blocks and lyrica and and and.

Oddly, this stuff hasn't sapped the joy from my life; just hobbled down to the bridge and took some pics of the raging April Lamoille river. so cool. And frankly, I don't put on a front at all- except for trying not to involuntarily make noises of pain when I'm around people who will say something like "are you ok?". I prefer for people just to ignore it and people who know me well, know to do so.

My goal is to ride a bicycle from St. Johnsbury VT to Ipswich MA this summer. I won't settle for just breathing!

I'm so sorry about your MS and hope things look up for you.

Thanks for your kind and thoughtful response.

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