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May is Neurofibromatosis Awareness month [View all]
I was wondering if there are any other DUers who have this genetic disorder or if they have family members with NF. My son had NF 1 and died from a glioblastoma brain tumor in March of 2020. There are studies being done linking some glioblastoma brain tumors with Neurofibromatosis. My son's neuro-oncologist reached out to an NF clinic while he was being treated by her.
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