Chronic Health Conditions Discussion and Support

Ms. Toad

(37,220 posts)

7. Ironically, we were there on the day you posted this

Mon Jun 18, 2012, 10:59 PM

Jun 2012

Victoria's Restaurant - wonderful, and they have a gluten free menu.

We were there for a medical conference. My daughter has had ulcerative colitis (since age 4) and now has primary sclerosing cholangitis as well. Make sure your littlest is having regular liver function tests. PSC is much rarer with crohns, but there are a number of people with crohns who have it.

I can look up the gastroenterologists who presented at our conference, if that would be helpful. We didn't actually have any medical visits while we were there.

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anybody been to mayo? [View all] mopinko May 2012 OP

we went years ago for the hubs. We stayed at a place that had Famous Dave's BBQ attached to it demtenjeep May 2012 #1

I would be curious as to the Crohn's treatment demtenjeep May 2012 #2

are you talking about remicade? mopinko May 2012 #3

yes, I was started on it 3 years ago demtenjeep May 2012 #4

eeesh. mopinko May 2012 #5

yes it does demtenjeep May 2012 #6

Ironically, we were there on the day you posted this Ms. Toad Jun 2012 #7

weird. mopinko Jun 2012 #8

Mine is 21 Ms. Toad Jun 2012 #9

well, here we are. mopinko Jul 2012 #10

Thinking of you today and hoping for the best! hedgehog Jul 2012 #11

the hubs says he will take me to Mayo for my Crohn's but I tell him I don't think anymore could be demtenjeep Jul 2012 #12

found here guts to be great (tho slow) but mopinko Aug 2012 #13

If they weren't willing to send you to one of their rheumotologists hedgehog Aug 2012 #16

they were thinking mopinko Aug 2012 #17

seems to me you might be eligible for the bone marrow trials. mopinko Aug 2012 #14

I hadn't thought of that, I will talk to my GI doc next month if I don't see him before then demtenjeep Aug 2012 #15